Fear: The Biggest Obstacle for Treatment?

As most people who have had to find help for themselves or their loved ones’ due to a mental health concern will likely tell you, treading the path to find treatment is an uphill walk to begin with. Getting in touch with the right people, asking the right questions, making the right choices, none of it is easy, especially at the beginning. If you ask me though, I think one of the biggest stumbling blocks on the way to receiving treatment is a short four-letter word. That’s right, fear.

Why fear? Because its an often crippling emotion. It causes hesitation, or withdrawing from many things. I believe it is one of the most powerful emotions due to its ability to petrify people to the core. So how does this tie in with getting treatment? Well in short, if you’re terrified of what the outcome may be, you probably won’t want to get treatment will you? Maybe the fear of what others will think, fear of hospitals, side-effects, the list could go on for ages. The point is that fear can quite often be debilitating, or cause enough delay that things really go down the tubes.

So what do you do about fear? There really is no right answer if you ask me. Some people are able to transcend their fears and get treatment, others are able to lean on the compassionate shoulder of a loved one in times of need. And sometimes, treatment is downright involuntary. I’m not saying that any of these are going to work for anybody, or that any are more effective than the other. It all depends on the individual situation as it arises. I’m not going to tell anybody what is best for them because I can’t possibly know, what’s best for you is between you and your care team.

So, what can you do about fear? Reach out, ask questions, communicate with those around you who know about your condition. I’ve often found that talking it out with others can usually cut my fears down to size. Because fear feeds on itself, it has a habit of snowballing into what seems like an impossible task. But think of it this way. Whether you have schizophrenia, anxiety, OCD, bipolar, depression, any condition really, think of all the people who have been where you are now, how many of them get past it one way or another? Lots. Just remember that you’re not alone.

Stay Strong.

A Year in Review: Lessons Learned as a Caregiver and Husband

It has been quite a journey since being told of my wife’s diagnosis. Teeming with memorable ups, painful lows, and everything in the middle. There is a plethora of blessings and curses alike to be taken from such a journey. Wisdom and understanding are two such attributes that can be attained as both a caregiver and as somebody with mental illness. But in order to gain insight into wise ways and empathetic understanding it is often necessary to take some lumps and bruises along the way. So what exactly have I learned from our new way of life? Well, let’s look, shall we?
If I were to simply lay out a nice, clean-cut, and definitive list, that would hardly resemble the menagerie of lessons I have had to decipher along the way, would it? I will, however, do my best to lay it out in a way that hopefully allows you to take something from it.
Without a doubt, one of the most prominent lessons I have absorbed is empathy. Looking outside of myself and trying to genuinely see the world in a way that others experience. For instance, in the past I have often looked at my situation and thought “poor miserable me.” What I should be thinking though is “what can I do to make your day better?”. Attempting to “walk in their shoes” would force me to see that while, yes, my situation might not be optimal, there are people around me who could really benefit from me putting on my big boy pants and trying to help them through their struggles. And guess what? It makes me feel better, too. Not only does this empathy open my eyes to helping others, it also allows me to get a very rough idea of their struggles. For example, trying to truly imagine how it would feel to experience even a fraction of her symptoms on a bad day. All I can say is that she handles it better than I could. That brings us to the next lesson, patience.
I have often been told that patience is a virtue. Little did I know just how those words were to ring true. Not only is being patient a useful skill when waiting on results and doctors, it’s also highly beneficial when having to face the inevitable symptoms of mental illness. Marriage makes that importance that much more important. For example, say your partner is on the verge of a psychotic episode, or perhaps they are on the verge of suicide. It is safe to say that these are moments where you do not want to be in a rush or pushy to conclude this stressful scenario. If, however, you allow the resolution to take as long as is necessary, it can help to keep the situation from escalating. Another benefit, especially when working with psychosis, is that being patient can result in making the individual with symptoms feel more calm or assured than if you were to panic or react in a negative manner. This by no means indicates that the situation will resolve immediately. It simply means that it can potentially mitigate stress and harm to everybody involved.
A hard-learned lesson for myself and, I am sure, many other caregivers, is the act of self-care. You strive to be the best caregiver you can be, pushing yourself past limits that would normally break you. Yet you persevere because really, what other option do you have? Your loved one needs you, so you play the herculean role; maybe you have other children who need you too. More than likely you have multiple responsibilities to look after. And you play the role of Atlas, the weight of the world borne upon your shoulders. It’s noble, and many of us do just this for weeks, months, or even years. There is just one problem – we are only human. That means we are vulnerable to that dreaded “b” word. Yup, that bane of any caregiver’s existence, burnout. Many of us have walked this thin line before. How can you avoid burnout? The answer is simple, yet not remotely easy. Self-care, that’s the remedy that can stave off burnout. I will be the first to admit that I was sorely lacking in this department. I poured myself into being a caregiver, on top of my other responsibilities. Things like school, work, family, pets, household chores. I told myself that I could handle it all. Then I started to wear out. The fatigue, loss of drive and ambition, not eating or sleeping enough, the bottoming out of my stress tolerance; even the most minor of stressors like a wrapper on the floor and boom! Day ruined. I lost myself in my role as caregiver. So, what did I do? I started slowly practicing self-care, treating myself to moments where I tried to only worry about myself. That’s not to say I stop caregiving; my role as caregiver and husband has always been a top priority. Along with a billion other things. I just put myself in the top five priorities so as to climb out of the burnout trenches. Think of it like this, when they do the safety presentation on airplanes, you know the ones with the oxygen masks? What do they say? You are instructed to take care of yourself and then any dependents. Sounds a bit ass-backwards, doesn’t it? But how can you help anybody if you are passed out from lack of oxygen? You can’t. So, by taking care of yourself, you are also taking care of those around you. If your wife, kids, parents, or anybody else depends on you then doesn’t it make sense to make sure you are ok? You wouldn’t want to let them in a worn out and unreliable boat. You would want them to be safe and looked after. So why would it be any different as a caregiver? If you can’t take care of yourself, you can’t help anybody else. In order to be an effective caregiver, it is imperative that you be in as good of shape physically, mentally, and emotionally as possible. So, by helping yourself you are also helping those who rely on you. So, help others by helping yourself a little to.
While I have learned countless things over the past 18 months, these three are probably the most critical – at least in my mind. Hopefully there is a little something here for you to take and help you or somebody you know. I wish you all the best on whichever path you are on. Anyway, that’s it from me today.

Why Music is My Therapy

We have all got something that is a simple passion that’s therapeutic. For some, its painting, or working on cars, or fishing, or maybe make-up. For me? I’d say its music. Just listening to music, and enjoying it. The thing that I’ve always loved about music is that it has feeling. Those feelings may be totally different from what the artist intended, but for most people, music carries with it emotion.

Music has always been a great communicator, its been able to transcend barriers of language, colour, age, you name it. That’s why I love music, because it is able to convey all sorts of meanings without saying a word. It doesn’t matter if you listen to death-metal, country, or classical, Music is music and its great. For me? I don’t really care what genre, if I like it, I listen to it. I love music because, for me, its therapeutic. It can keep my feet planted firmly on the ground when everything else tries to make me fly into that cold and void space above or push me down into the ever so lonely depths below. No, I’m not talking about heaven and hell. I’m talking about my bipolar disorder. But that’s an article for another day.

So where do bipolar disorder, or mental illness of any kind really, and music connect? Well for me. Music has always been an extension of my mood. When I’m happy, I like happy music, when im sad, I enjoy more sad or forlorn music. But this extension goes both ways. Have you ever been feeling a negative emotion, such as anger, sadness, jealousy, any of ‘em really? And then a song you like starts playing, and it steadily melts away the freezing loneliness of that negative emotion? I know I have. I’ve always struggled with emotions and feeling them and responding appropriately to them. I’m the guy that used to wanna die because I couldn’t handle being sad. I’m the person who used to be so happy I would think I could almost fly. When I was angry, I was downright scary, to others and myself. So what changed?

What changed was a myriad of different factors in my life ranging from my bipolar/ADHD diagnoses, getting medicated, learning how to cope through the school of hard knocks, and trying to discover who I was. All of these are stories for another time (stay tuned!), but there were a few things that remained constant that probably kept me from really pinballing my life. You know… like a pinball getting thrown around the machine with reckless abandon only to get lost down some bottomless hole? Those things were, in no particular order, were the support of my loved ones, having to face myself, and music of all things.

Music is a pillar that makes up a part of the foundation of my life. How many of us have a favorite tune? Or multiple jams? I know for me, my jam changes constantly. That is because, for me, music is a way of expressing my thoughts and feelings when I don’t have the words or ability to express it myself. And you know what? Sometimes these songs, that somebody else created, teach me about myself. It is as though music is a way of growing my emotional vocabulary, of shedding the light into the very fibre of my being and allowing me to learn about and face myself.

Music is so many things for me, story teller, therapist, friend, coach, the list could go on and on. So, let me ask you. What’s your “music”? What is it that gives you that spark in your eye? If you can’t think of anything, don’t sweat it. These things can take time to become apparent. Heck it’s taken me my whole life to clue into music and how it affects me, and that is okay. Think of it as a new opportunity for adventure, an adventure of emotions and the landscape of who you are.

Burnout: The Silent but Deadly Threat

It’s the bane of any caregiver’s existence. That looming silent shadow at the back of your mind. it’s always there, patiently waiting to worm into the fabric of your life. I’m talking about burnout, specifically as a caregiver. It really isn’t fair, is it? You want nothing more than to help your loved one as best as you can, most of us would happily sacrifice everything in the hopes of helping them. But you can’t, because you know what happens when you give up everything? When you lose yourself in what you do as opposed to who you are? That’s right, burnout. The fact of it is that even with an act like caregiving, you can’t give everything of yourself and hope to get by without yourself.

Caregiver burnout is usually what happens when you’ve been stretched to the max, you just can’t give anymore of yourself. You can be tired, irritable, depressed, anxious, any number of nasties really. It happens when you push too hard and too fast and give all you’ve got until you have nothing left.

That dark looming cloud overhead doesn’t have to stay there though. You can make it go away, its not easy, but its probably worthwhile. Reach out. Hold out your hand and ask for support. Asking for help doesn’t make you weak, far from it. Anybody who has swallowed their pride and allowed others to share the weight will tell you that it only makes you stronger. Think of the bundle of sticks analogy. One twig is pretty easy to break, right? Well try grabbing a handful and break them at the same time. It’s quite a bit harder, isn’t it? The point is, you don’t have to do this alone. I’ve often found that many people want to be helpful but just aren’t sure what to do, so if somebody offers their assistance, take it, be up front about what you could use help with. Many hands make light work, right?

Its all about you finding balance in your life. If you can find that middle ground. That spot where you can be a caregiver AND yourself, it will be better not only for you, but also the loved one who you care for. Just remember that every storm breaks.

Stay strong!

Why I Don’t Use The Word Disability

We all have a few. Words that leave a bitter feeling in our gut when we hear them. For me, that word would be “disability”. Its not the word that irks me, it’s the negative connotation that comes with it. It insinuates that just because you have a “disability” that you’re somehow less than, or lower on the food chain because of it. You probably know from people who you’ve maybe encountered who were “disabled” that they are far from being less than the rest of society.

I’m a firm believer that each and every human being has potential. I don’t think everybody unlocks their potential, but its there. So when I see somebody or meet somebody who has a medical condition, my first question to myself is “I wonder what their potential is”. I don’t like to use the word disability because to me it feels like I’m putting somebody into a box, or building a wall around them. If you ask me the word, along with the connotation it carries, is disabling in itself.

What kind of a message do we send people when the way we treat people revolves around whether or not they have a medical condition? Are accommodations necessary? Yes, but so is equality. By equality I mean we don’t judge a person based on conditions, but on their merit. Everybody gets the opportunity they deserve, regardless of conditions, colour, sexual orientation, you name it. I’m not saying that people should be put on a pedestal. I’m saying we should be able to look at each other for who we are. Human beings.

Should the word be outright removed from the English language? I don’t believe so, but we should change the way we use the word. It should be used strictly in the medical sense, not as a club with which to bludgeon others.

At the end of the day, it is just a word, but as they say, “the pen is mightier than the sword.” To summarize, remember the Golden Rule. Treat others the way you would want to be treated.

The Pendulum of Mental Illness

It swings back and forth, side to side. Some days you’re at one extreme, other days you’re at another. But some days, you’re right in the middle, and life is good. Those are the moments to be cherished. What are these extremes you ask? Well the one, let’s say on the left side, is when things are difficult. Maybe you’re in hospital, maybe you’re experiencing residual symptoms, in short, this is the low end of mental illness, it feels like crap. Then on the right side, its when things are going a little too well. Maybe you’re lulled into believing you’re cured, maybe the treatment doesn’t seem so critical now, you’re on cloud nine. And then there’s the middle of the pendulum, that sweet spot. Where life is good, but your feet are still on the ground. Those are the days that make it all worth it.

So, what is it like on the proverbial left side? Well I’d say those are the moments that leave you feeling drained and helpless, maybe they make you want to scream out in frustration. Perhaps the left side leaves you wanting it all to just stop already. For many people, there are just as many reactions and responses. Many negative emotions and thoughts can crop up on the left side. Sounds pretty rough, right? Well, guess what? You know how a pendulum works? It swings back and forth, it never stops in any one spot for too long. That can only mean that we won’t be trapped on the left side forever, because we are gonna swing back into the middle and the right.

The so-called right side? That’s when things are going a little too well. Maybe you feel that treatment is no longer necessary, or that its all under control. This time its dealt with, the war is won! Or is it? It may not sound that bad at first but in my experiences its often a trap just waiting for me to walk through. SNAP. And then the pendulum goes flying back into the left side. It can be a pretty nauseating ride, that’s for sure. But have no fear! Because somewhere in between lies the middle.

Ahh finally, the mysterious middle. It’s the spot that everybody yearns for. Just what is the middle like? Well, its those moments that never seem to last quite long enough, yet they last an eternity. Its when it feels like you can handle tomorrow, because you handled today. It’s a difficult space to explain, the experience is different for everybody, but I can imagine that the feelings are nearly identical. Peace, serenity, and determination often arise from the middle. Bring it on mental illness! because we’re ready, we are no strangers to this fight.

Whether you’re on the left, the right, or you’re in the middle, just remember that “this too shall pass.”

The Therapy That Lives in Caregiving

Caregiving can be both exhausting and rewarding. Personally, I’ve found so much positivity through caregiving. Through being of service to my wife, I’ve found my voice and strength I’ve never thought I had. I’ve often wondered what my purpose in life was, and I feel confident in saying that helping my wife where I can has given me direction.

That’s not to say that caregiving is my sole driver in life. I’ve also found myself. Through being apart while my wife was in hospital, it gave me quite a bit of time to reflect on who I was and wanted to be. I’ve always had a constant desire to be helpful to people and try to assist in any way I could, helping my wife has given me an outlet to help and be of service to somebody.

Through my experience caregiving, my opinions and outlook on the world have changed dramatically. For the better I hope. Its made me much more compassionate and understanding towards others. In fact, its been my desire to help others that has driven me to begin this blog. Its been the hope that the experiences of my wife and I would maybe, just maybe, be of benefit to other people.

I imagine I’m not the only one who has found caregiving therapeutic. It can make you feel really good about yourself because you’re giving as opposed to taking from somebody. Plus, what doesn’t kill you can only make you stronger right? How many of us have had dreams growing up of wanting to be a hero? To help others when they need it? To give somebody else a lending hand. I grew up full of those dreams. Dreams of being a doctor, a firefighter, just a good Samaritan, and you know what? I’ve done one better for myself. I’m working with my wife to help both her, and our marriage to thrive.

I feel as though I am a gardener planting a lily. Gently covering it in soil and lovingly watering the seed, and then getting to experience the joy and pleasant serenity in watching this flower grow and bloom. Its an interesting thought because it doesn’t matter how much I water that seedling, it still has to break through all the dirt and pull itself up. Teamwork. I can’t just will that flower to grow, there has to be work on both ends. While the journey may be different for the flower than the gardener, they need each other. Because without the determined lily, the gardener’s flowerbed wouldn’t be the same, would it?

To all the lilies out there, Keep breaking through that soil so us gardeners can enjoy watching you thrive.

Hope: The Foundation of Life

Note: I am not a psychiatrist or medical professional. My experiences and opinions are due to having mental illness and living with somebody who has schizophrenia.

One of the most recurrent ideas that I’ve noticed on the journey of caregiving and mental illness, is hope. To never lose hope, to always hang onto it. But if we’re being honest, that’s easier said than done. So just what does it mean to have hope?

Having hope doesn’t mean that you never get frustrated or never fail. Having hope means that even when you fall from the sky and crash and burn, that you get up, dust off your wings, and take off again. Why do you rise again? Because you have hope. To me having hope means that you have a vision and a goal of where you want to be in the future, and that you strive for it. That goal is different for everybody and may change quite regularly, but the vision is usually similar. I think its safe to say that we all envision a better spot on the road than what we are on now. Maybe you see a better world for everybody, or maybe you just see another milestone to beat. Its not the surface content of the vision that matters, it’s the underlying drive, which for me, and hopefully for you too, is hope.

There’s always hope. Even if you can’t see any sign of hope, its there. Because even when you’re at your lowest point, there’s still hope. Hope that pain will disappear, hope that things will get better, hope that somebody will hear your SOS. I’m not saying that its all unicorns and rainbows and lollipops (I wish lol), but hope is the first building block of any great wonder. The Wright brothers for example, guess what made their dream possible? That’s right. Hope.

So just remember, if you’ve recently been diagnosed, that doesn’t mean your life is over. Is it a punch to the gut? It sure as hell can be, but its not necessarily the end. Maybe you’re having a hard time in recovery, maybe you’ve had break-through symptoms or another episode. You’ve been through it before, this isn’t your first spin on the merry-go-round. Just keep your eye on your current goal and never lose sight of your vision. Maybe you’re contemplating that lonely road that is suicide. If you are, I want you to know, and I mean this, you aren’t alone. And you know what? Every storm breaks. No matter how dark the sky may seem, it’ll pass. The sun always rises. All I ask, is that you have hope. Hope that maybe, just maybe, there’s more to life than this.

Stay strong friends, talk to you soon.


Marriage and Schizophrenia

What’s it like being married to someone with schizophrenia? Well I guess you could say its like any other marriage. It has its ups and downs, good days and bad days. but mostly, it has, and needs, lots of love and compassion.

Like any marriage, its not an easy road, but man is it ever rewarding. My wife is still my wife, as she always will be. Between the hospital stays and psychotic episodes, which are getting fewer and farther between, there are moments with just as much power and love and devotion as any other marriage. Some couples have to deal with financial issues, others the death of a child. For us its mental illness, and I’m alright with that.

My wife’s diagnosis allows me to be helpful and stand by her in a way that’s unique to our marriage and situation. I talk her through psychosis, I help her keep track of medications, appointments, and everything in between. I also take her to the movies because I like to (even if its romance), I like to drive around with her and spend time together with our families. Our marriage is just as unique as any other marriage.

Sure, it can be stressful, but stress can accompany just about anything and everything I do in life. We love doing things like going to the zoo, or going out for dinner. Honestly the only real difference is that sometimes we have to take extra precautions. For example, we have walked out of restaurants or movies because sometimes its just too loud for my wife due to her schizophrenia. Other times we have to be prepared for the possibility of something that may trigger an episode. But for the most part its just as unique as any other relationship. We live, laugh, and love together on this journey known as life.

Is marriage involving a “disability” (I quote the word disability because I find it misleading but that’s a story for another day) for everybody? No, everybody handles these sorts of things differently. But for us it works. If you are really in love with somebody and are willing to go to hell and back for happiness together, then go for it.